Rare is everywhere

It’s not rare to have a rare disorder. Up to 377,076 people in New Zealand have a rare condition. Collectively, rare disorders affect more Kiwis than diabetes.

Get involved in Rare Disease Day and help raise awareness and funds for support groups throughout the country.

GabrielleMeet Gabrielle

Seven-year-old Gabrielle from Nelson is one in a million. She has an extremely rare progressive bone marrow disorder called dyskeratosis congenita.

"Gabrielle just gets on with things and doesn't let her disease stop her from doing anything she sets her mind to."
–– Mum Megan

Read Gabrielle’s story